IN THIS VIDEO:
THE WEEKS BEFORE DANIEL PASSED AWAY. LIFE WAS SO FULL OF JOY AND BLESSINGS. HARD TO BELIEVE HOW IT HAPPENED IN A FLASH.

I MISS HIM SO MUCH. GRIEF IS BEYOND COMPREHENSION. LOSING A CHILD. ALL OF IT. MY WORLD IS STILL UPSIDE DOWN. ITS BEEN LIKE 3 MONTHS NOW. (TODAY IS APRIL 18, 2024)

SOMEHOW, IN THE DARKEST MOMENTS, I FEEL THE LIGHT AND LIFT OF DANIEL'S LOVE. AND MY LOVE. BUT GRIEF IS LIKE A SPIRAL, NOT A LINEAR THING. THEREFORE, IN THE BEGINNING, IT FEELS LIKE YOU ARE IN A WAR EMOTIONALLY.

I HAVE MUCH TO SHARE. I HAVE HOPE, AND A BEAUTIFUL FAMILY. THIS, HOWEVER, HAS REALLY CHANGED ME IN SO MANY WAYS.

I WANT TO REMEMBER THE LOVELY SPIRIT THAT DANIEL HAD. HE WAS SIMPLY, PURELY, GOODNESS AND KINDNESS.

Welcome to my channel...

Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.

Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!

The Adapted Life Podcast, by Julie Hasselberger. listen !
https://theadaptedlife.buzzsprout.com


Music licensed by Epidemic sound and Premium Beat

filmed with Canon G7X Mark II

#caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
#cerebralpalsy#disabledchild