IN THIS VIDEO:

MAY 23 - 27, 2024

Life as just "Julie and John" without Daniel. It is a slow and strange transition for sure. We found a buyer for Daniel's Wheelchair van, and finalized the transaction on May 24th. It was really heart breaking. We had been so delighted and happy with getting that van for Daniel. He loved it!! But we knew we didn't need to keep it, and found a good buyer and a good offer. I was gutted for days. Still am. I miss everything. Everything about Daniel's life.

Just two people navigating and caring for each other, that's what we are.

Welcome to my channel...

We lost our beloved Daniel on January 12, 2024. Stay with me as I work through grief and finding purpose. It is early days. And very hard.

Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.

Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!

The Adapted Life Podcast, by Julie Hasselberger. listen !
https://theadaptedlife.buzzsprout.com



Write to us!

Julie Hasselberger
PO BOX 3611
Newtown, CT 06482

Music licensed by Epidemic sound and Premium Beat

filmed with Canon G7X Mark II

#caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
#cerebralpalsy#disabledchild