Published On Jul 1, 2024
IN THIS VIDEO:
MAY 5 - 11, 2024
It just feels like a war, the whole act of surviving. Going on. Feeling such deep grief. Missing Daniel every day. Not feeling like I have a purpose because I am quite lost. f
Welcome to my channel...
We lost our beloved Daniel on January 12, 2024. Stay with me as I work through grief and finding purpose. It is early days. And very hard.
Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.
Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!
The Adapted Life Podcast, by Julie Hasselberger. listen !
https://theadaptedlife.buzzsprout.com
Write to us!
Julie Hasselberger
PO BOX 3611
Newtown, CT 06482
Music licensed by Epidemic sound and Premium Beat
filmed with Canon G7X Mark II
#caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
#cerebralpalsy#disabledchild