Development milestones in children with AMC: Understanding and creating new tools.

The development of a child is determined by complex interactions between various factors, such as the severity of the child’s condition and environmental factors. Better understanding how children with AMC reach developmental milestones was shared as an important need by families of children with AMC, and having tools to evaluate children with AMC was voiced as an important deliverable for clinicians.

This session will describe:
a) The development of children with AMC between 0-5 years of age using data from an AMC registry of 400 children across North America.
b) The SHAPE-UP (Shriners Hospital Arthrogryposis Pediatric Evaluation-UPper Extremity) tool to evaluate the upper extremity in children 1-21 years of age.

This talk will shed light on how this information can be useful for parents, clinicians, and researchers working with a child with AMC.

Brought to you by AMCSI. Learn more at amcsupport.org