Toolkits for adults with AMC and caregivers

As AMC is rare, individuals with AMC and caregivers of children with AMC may experience challenges in accessing care, getting information, and finding supports.

To address these challenges, this session will present the work of two trainees on:
a) The developmental of a toolkit for adults with AMC using focus groups with knowledge users and experts;
b) Describing the caregiving experience in AMC using information collected from a survey and interviews across 4 countries.

This session will provide tools to raise awareness on the needs of adults with AMC and caregivers of children with AMC. We are looking forward to your feedback during this session in order to refine our projects!

Brought to you by AMCSI. Learn more at amcsupport.org