IN THIS VIDEO:

ON APRIL 27, 2024 JOHN AND I DROVE TO MIT IN CAMBRIDGE, MA TO SEE THOMAS PERFORM WITH THE BERKLEE MOTION PICTURE ORCHESTRA. IT WAS A WONDERFUL DISTRACTION. HE PLAYED BASS CLARINET AND ALTO SAXOPHONE TODAY.

Welcome to my channel...

We lost our beloved Daniel on January 12, 2024. Stay with me as I work through grief and finding purpose. It is early days. And very hard.

Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.

Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!

The Adapted Life Podcast, by Julie Hasselberger. listen !
https://theadaptedlife.buzzsprout.com



Write to us!

Julie Hasselberger
PO BOX 3611
Newtown, CT 06482

Music licensed by Epidemic sound and Premium Beat

filmed with Canon G7X Mark II

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#cerebralpalsy#disabledchild #lossofchild #musician