IN THIS VIDEO:

254 days ago, from the day I recorded this talk, my beautiful son Daniel passed away at the age of 26.

The journey I am on now, is really bizarre. There is no linear progression as far as I am concerned. Having been my son's full time care giver for his entire 26 years of life, made an indelible mark on my soul. In the loss of my boy, and the beautiful life we had caring for him, I am mostly alone and sad. Talk about your loss of purpose. The struggle is real.

Sometimes I have hit days where I experience what I named "the stuck". Where I completely lose all focus and nothing I try to do feels possible. Like a numb dissociation. So strange to be "just me" and not "me and Daniel".

The adapted life, is still the adapted life. Adapting to loss of the son who fostered the reengineering of our entire life style and value system because he needed care 24/7. And then, blip... I stand in my home, listening to the sounds of the house. So quiet. Stuck in the unknowing.

Welcome to my channel...

We lost our beloved Daniel on January 12, 2024. Stay with me as I work through grief and finding purpose. It is early days. And very hard.

Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.

Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!

The Adapted Life Podcast, by Julie Hasselberger. listen !
https://theadaptedlife.buzzsprout.com



Write to us!

Julie Hasselberger
PO BOX 3611
Newtown, CT 06482

Music licensed by Epidemic sound and Premium Beat

filmed with Canon G7X Mark II

#caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
#cerebralpalsy#disabledchild