Navigating the Challenge of Finding Caregivers

Respite Care for SMA Patients

Navigating Visits With Friends While Living With SMA

SMA + Kidney Stones = A Recipe for Hospitalization

I Broke My Jaco

Striking a Nerve Can Be a Real Pain

The Looming Threat of Inaccessibility

The Role of Humor in Life With a Rare Disease

A Failed Attempt at Accessibility

Preparing for My Next Spinraza Injection

Turning Frustration Into Fun With Help From the Jaco

Why Asking for Help in School Isn’t a Weakness

Dealing With Disappointment

Preparing for a Better Tomorrow

Disability Gardening Simplified

My Biggest Monster: An Update

Tips for Retaining Caregivers

Is My Town's New Kohl's Accessible?

My Biggest Monster

Focus S’more on the Wins

DeAnn’s “Survivor” Casting Video

Horrific to Terrific

Why You Should Read Judith Heumann’s Memoir

9 Steps to Help With the Live-in Caregiver Search

Adding My Voice: Helping to Shape Policy for the Jaco Robotic Arm

How a Cough Assist Machine Makes Life With SMA Easier

Advocating for Home Care Meeting My State Representative

The Importance of Checking for Pressure Sores

Spare Time Projects While Living With SMA

Reflecting on My Annual Upper Limb Module Exam