In June, Justin White ’00 traveled with his wife, Kate, and their two sons, Caiden and Teddy, from their Connecticut home to Rochester—a trip the family has made more than 30 times since May 2022.
Four years ago, Teddy, 6, was diagnosed with the rare genetic disorder Duchenne muscular dystrophy. With no cure for the condition, his doctors suggested gene therapy. The Whites chose to have the treatment done at the Medical Center, due to the strengths of its Clinical Research Center in conducting experimental gene therapy trials. Teddy completed the most recent phase of his trial during the family’s June visit. The Whites are planning a permanent move to the Rochester area.

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