I was diagnosed with Kallmann syndrome at the age of 23 after being incorrectly labelled as a "late bloomer"

Kallmann syndrome is a rare genetic hormonal condition where puberty fails to start correctly.

People with this condition do not go through normal puberty.

Testosterone therapy can help with most of the physical changes that should have occured at puberty, apart from being able to fertile.

The condition can be associated with a number of other symptoms. In the case of Kallmann syndrome, anosmia or no sense of smell is a key defining symptom. I also have poor hearing which is another associated symptom.

The condition affects about 1 in 25,000 males and 1 in 120,000 females.

The condition is normally present from birth but can be aquired during life after a normal puberty.

I have to be on some form of hormone replacement therapy all my life since I do not produce testosterone naturally. Should I wish to be fertile I would have to take a different form of treatment called gonadotropin therapy.

Missing out on both puberty and a normal adolescence can be difficult to cope with growing up.

https://rarediseases.info.nih.gov/dis...
https://medlineplus.gov/genetics/cond...
https://www.frontiersin.org/journals/...

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