It's day two after the surgery and we just want to go home. But we're delayed because no one knows how to de-access a port-a-cath. However, Elin is doing really well, tolerating fluids and food, tolerating being in her wheelchair and she has had that all important post-surgery bowel movement.

I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.

Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.

On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.

Elin’s medical procedures playlist: https://bit.ly/2HhKFsE
Tips and tricks playlist: https://bit.ly/2ugfoy1

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