Sisters Living with the Same Rare Genetic Disease: Maureen & Lauren’s Story
Alexion Pharmaceuticals US Alexion Pharmaceuticals US
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 Published On Mar 23, 2023

Serious metabolic diseases can affect the way your organs function and can put you at risk for serious health problems. Two sisters were diagnosed at a young age with the ultra-rare genetic condition lysosomal acid lipase deficiency (LAL-D): Lauren at age 8 and her sister Maureen at age 12. Hear their story about how they have grown together while living with this serious disease and how they have relied on each other for support.

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