Apart from searching for a cure, the biggest challenge for families living with Epidermolysis Bullosa is the cost of wound care.

Thankfully, financial burden is not one of them, because of access to subsidised products, through the National Epidermolysis Bullosa Dressing Scheme.

Young parents Alarna and Harley have a two-year-old daughter Alexis, who lives with recessive dystrophic EB. They are recipients of subsidised wound care products through the National Epidermolysis Bullosa Dressings Scheme.

This is their story.

https://www.ebdressings.com.au/