Join us as we continue to share our families journey of love and loss. Blessings ❤️

#trisomy13 
#alobarholoprosencephaly 
#raregeneticdisorder
#extrachromosome
#nicu
#picu
#compatiblewithlife 
#compatiblewithlove 
#specialneeds
#trachbaby
#trachlife
#trach
#gtube
#medicallycomplex
#sepsis
#grief
#childloss
#medicalmom
#medicaldad
#medicalparents
#SamaraStrong

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Music By:
Yolanda Adams - I'm Gonna be Ready


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