my story - life with loeys-dietz
Eva Norum Eva Norum
52 subscribers
1,960 views
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 Published On Jun 26, 2019

hello everyone!! this is the first video I have published to youtube, so to say im nervous is an understatement! Below are a ton of useful resources if you are interested in learning more about my condition!

https://ghr.nlm.nih.gov/condition/loe...

https://www.hopkinsmedicine.org/healt...

Thank you again to the lovely Kayley Tigges for not only writing a beautiful song for me to use, but doing it in less than 24 hours!! Find her channel down below to hear more of her beautiful voice.

   / @kayley8890  

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