Published On Jan 3, 2023
Full "Talking to Doctors/Convincing People" video playlist:
• Talking to doctors about ME/CFS #1
My ME/CFS resource site: cfs-me-navigator.com
*I am someone who was on the edge of very severe who has improved over the course of 5 years to moderately severe. I am still in a reclining wheelchair outside the home.
TREATMENTS
Low Dose Abilify (LDA) https://translational-medicine.biomed...
Low Dose Naltrexone (LDN) https://www.frontiersin.org/articles/...
Valcyclovir
https://pubmed.ncbi.nlm.nih.gov/18019...
Ketotifen (a mast cell stabilizer) is also being used to good effect by Stanford and by Dr. Nancy Klimas' clinic. No studies yet.
More treatment info: https://cfs-me-navigator.com/treatments
About the deeply flawed Pace Study:
(research)
https://www.qeios.com/read/XUG3PT.2
https://www.ncbi.nlm.nih.gov/pmc/arti...
https://www.ncbi.nlm.nih.gov/pmc/arti...
https://pubmed.ncbi.nlm.nih.gov/19855...
Treatment Harms To Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
https://www.qeios.com/read/XUG3PT.2
(Articles)
https://www.statnews.com/2016/09/21/c...
https://www.npr.org/sections/health-s...
https://www.npr.org/sections/health-s...
The international Consensus Criteria can be downloaded in pdf form here: https://www.researchgate.net/publicat...
AUTHORITY/PROOF for DOCTORS
The CDC website: https://www.cdc.gov/me-cfs/index.html
Stanford's Center: https://med.stanford.edu/chronicfatig...
Harvard's center: https://endmecfs.mgh.harvard.edu/mesm...
Colombia University's Center: https://www.publichealth.columbia.edu
Biomedical Test for ME/CFS by Stanford (not yet able to be widely distributed sadly)
https://med.stanford.edu/news/all-new...
About the deeply flawed Pace Study (and CBT and GET):
(research) https://www.qeios.com/read/XUG3PT.2
https://www.statnews.com/2016/09/21/c...
https://www.npr.org/sections/health-s...
https://www.npr.org/sections/health-s...
Stanford's Blood Test:
https://med.stanford.edu/news/all-new...
MRI differences: https://translational-medicine.biomed...
About the Gut Microbiome: https://www.ncbi.nlm.nih.gov/pmc/arti...
RESOURCES FOR DOCTORS
U.S. ME/CFS Clinician Coalition Resources for Doctors: https://mecfscliniciancoalition.org/r...
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management (Mayo):https://www.mayoclinicproceedings.org...
Resources for Medical Providers Caring for People with Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome (U.S. ME/CFS Clinician Coalition) https://mecfscliniciancoalition.org/?...