Talking to Doctors about ME/CFS #2
Corey ME CFS Navigator Corey ME CFS Navigator
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 Published On Jan 3, 2023

Full "Talking to Doctors/Convincing People" video playlist:
   • Talking to doctors about ME/CFS #1  

My ME/CFS resource site: cfs-me-navigator.com

*I am someone who was on the edge of very severe who has improved over the course of 5 years to moderately severe. I am still in a reclining wheelchair outside the home.

TREATMENTS
Low Dose Abilify (LDA) https://translational-medicine.biomed...

Low Dose Naltrexone (LDN) https://www.frontiersin.org/articles/...

Valcyclovir
https://pubmed.ncbi.nlm.nih.gov/18019...

Ketotifen (a mast cell stabilizer) is also being used to good effect by Stanford and by Dr. Nancy Klimas' clinic. No studies yet.

More treatment info: https://cfs-me-navigator.com/treatments

About the deeply flawed Pace Study:

(research)
https://www.qeios.com/read/XUG3PT.2

https://www.ncbi.nlm.nih.gov/pmc/arti...

https://www.ncbi.nlm.nih.gov/pmc/arti...

https://pubmed.ncbi.nlm.nih.gov/19855...

Treatment Harms To Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
https://www.qeios.com/read/XUG3PT.2

(Articles)

https://www.statnews.com/2016/09/21/c...

https://www.npr.org/sections/health-s...

https://www.npr.org/sections/health-s...

The international Consensus Criteria can be downloaded in pdf form here: https://www.researchgate.net/publicat...


AUTHORITY/PROOF for DOCTORS

The CDC website: https://www.cdc.gov/me-cfs/index.html

Stanford's Center: https://med.stanford.edu/chronicfatig...

Harvard's center: https://endmecfs.mgh.harvard.edu/mesm...

Colombia University's Center: https://www.publichealth.columbia.edu

Biomedical Test for ME/CFS by Stanford (not yet able to be widely distributed sadly)
https://med.stanford.edu/news/all-new...

About the deeply flawed Pace Study (and CBT and GET):

(research) https://www.qeios.com/read/XUG3PT.2

https://www.statnews.com/2016/09/21/c...

https://www.npr.org/sections/health-s...

https://www.npr.org/sections/health-s...


Stanford's Blood Test:
https://med.stanford.edu/news/all-new...

MRI differences: https://translational-medicine.biomed...

About the Gut Microbiome: https://www.ncbi.nlm.nih.gov/pmc/arti...


RESOURCES FOR DOCTORS

U.S. ME/CFS Clinician Coalition Resources for Doctors: https://mecfscliniciancoalition.org/r...

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management (Mayo):https://www.mayoclinicproceedings.org...

Resources for Medical Providers Caring for People with Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome (U.S. ME/CFS Clinician Coalition) https://mecfscliniciancoalition.org/?...

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