Author, artist, and Alzheimer’s advocate Rev. Dr. Cynthia Huling Hummel joins Being Patient Live Talks to discuss her journey from a diagnosis of amnesiac cognitive impairment (aMCI) caused by Alzheimer’s disease to participating in research and working in advocacy. She’ll also be speaking about a proposed “Study Participant’s Bill of Rights,” which she collaborated on.

Hummel first noticed symptoms of cognitive decline at 49 years old and was diagnosed with aMCI due to Alzheimer’s after seeking a diagnosis for eight years. Leaving full-time ministry in 2011, she now focuses on participating in research and advocating for people living with dementia. She currently serves on the National Advisory Council on Aging, National Academy of Sciences (NASEM), Alzheimer’s Clinical Trials Consortium (ACTC), Dementia Action Alliance (DAA), and NIH/ NIA Advisory Group on Risk Evidence Education for Dementia (AGREED).

She is also an author and an artist, with her book “UnMasking Alzheimer’s: The Memories Behind the Masks,” featuring photography of several masks she’s made and her reflections on living well with Alzheimer’s disease.

Watch the full live talk to learn about her experience with diagnosis, research, advocacy, and living well with Alzheimer’s.
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Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia.

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Table of Contents

00:50 Early Signs of Alzheimer's Disease
1:51 Diagnosis of aMCI Caused By Alzheimer’s
4:19 Thoughts on Living Well with Dementia
6:23 About "UnMasking Alzheimer's: The Memories Behind the Masks"
9:51 About the Study Participant's Bill of Rights
14:23 Advice For Living With Alzheimer's
16:37 Advice For Caregivers
19:19 On Living Alone with Dementia
21:49 Tools and Activities For Staying Mentally Sharp
23:13 The Importance of Music in Her Life
24:35 Final Piece of Advice and Closing