I lost a day. When Elin had her second central line placed and finally had TPN, total parenteral nutrition, I was able to relax and my brain switched off. As a special needs mum in hospital I am feeling tired, burnout and when I know my daughter is safe I know I can have a post traumatic reaction. So the last couple of days melted together in some kind of brain fog but now I feel a lot better.

Elin has gone from being super happy one day to being super upset the next, and thankfully back to super happy again.

I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.

Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.

On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.

Elin’s medical procedures playlist: https://bit.ly/2HhKFsE
Tips and tricks playlist: https://bit.ly/2ugfoy1

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