A full day in the life of Lafora patient Chelsea Gerber in 2016.

This video was produced for the 2016 Lafora Disease Symposium.

Tragically, Chelsea has passed. We continue to #FightLafora in her honor. She and Linda inspire so much of our work to reach a cure for this terrible disease.

What is Lafora?

Lafora Disease is a rare neurodegenerative condition that affects children. Symptoms begin around puberty and include epilepsy, ataxia, childhood dementia, cognitive decline, and difficulty speaking, walking, and eating. There is currently no cure; the disease is always fatal.

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments. Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization.

For more information, go to https://chelseashope.org/

Lafora Body Disease

We are still fighting for a cure.

© 2022 Copyright Chelsea's Hope Lafora Children Research Fund

#LaforaDisease #RareDisease #Epilepsy #ChildhoodDementia